Loss of Hope

Finding out I was having twins was not a big surprise since multiple sets run on my father’s side of the family. Everything went extremely well for this, my first pregnancy. I couldn’t complain at all. My cravings were fruit and popsicles. At 24 weeks at a routine ultrasound it was noticed that my cervix hadopened quite a bit and I was admitted into the hospital on strict bedrest. At 28 weeks I woke with a lot of pain and tests showed my babies had ‘twin to twin transfusion syndrome (TTTS)” and Baby B was not recieving any fluids. I had an emergency c-section and had two beautiful identical girls, born May 2, 2002.

Fayth weighed 1 lb-15 oz and Hope 1 lb-12oz. They were beautiful despite all the wires and tubes connected with them. There were no real problems right away but rule of thumb for TTTS is that Baby A will have the most severe problems since it had to work so hard to get fluids over to Baby B.

On Mother’s Day the doctor’s told us that Hope was ill and they were going to have to operate. The doctors had found blood in her stool and she was very weak. It was such a horrible feeling, knowing there was nothing I could do to help.

As it turned out, Hope’s large intestine was removed due to an infection called NEC. She had a colostomy which I knew I could handle as long as I had my little girl. But she was not getting any better and the doctors came to us a week later stating that there was nothing they could do and we were going to have to let her go.

I just sat there. I had no idea how to react. My head was spinning and I was feeling sick to my stomach. The doctor explained all her health problems and that she wouldn’t make it through another operation, even if they tried. After a few minutes, he began to tell us that Fayth was sick as well and they suspected the same illness. I just could not believe this was happening to us! I had done everything right and could feel just how spunky they were when they were inside me. How could this be happening now?

Fayth ended up having the operation that evening, taking out her appendix. She seemed to be handling it very well. A couple of days later, Hope was removed from all of her tubes and we held her as she left. Just before she left she looked up and gave me one last smile. I can still see that smile. It will never go away. We lost her at 26 days old. I have never felt so helpless in all my life. But I now had Fayth to keep strong for. How is it [possible] to grieve and be happy both at the same time? I will never know how we got through it.

Fayth got well really quickly which we felt was too good to be true. Those couple of weeks are a blur and I had huge ache in my heart, knowing what the two of them had gone through.

Fayth is now 13 months old and is doing great. She is doing all the things she is supposed to do at her correct age and has had no problems thus far. Again, too good to be true. We have just passed the first anniversary of Hope’s passing and it was an extremely hard day. The guilt is so strong. As mothers we automatically feel as if we have to protect them and when we can’t, we feel it’s our fault. I’m not sure that it [this feeling] will go away. I go over and over all the things I feel I could have done in my head and wonder if…….? But I have Fayth now and seeing her makes me smile all the time. I love being with her and am glad I have her. Fayth being an identical twin, I can picture what Hope would’ve looked like as I watch Fayth grow. Despite how much it hurts – it’s also very heartwarming to know that Fayth now has her own Guardian Angel.

Norma-lee from Kitchener, Ontario, Canada

Loss of Twins

My name is Betty. I am on my second marriage to a wonderful man whom has no children. I have two children, an 11yr old daughter and 10yr old son, from a previous marriage. My story is that my husband and I had been trying to conceive for about a year and a half. In October of 2002 we found that my husband had a low sperm count and I had gone for an Hysteralpingogram [test to try and unblock fallopian tubes] and we were waiting for more tests to be performed. In November I had come down with a cold and put off going for a pregnancy test. Because of the odds who would think that it could happen? Well, I took a [pregnancy] test because I didn’t want to take all the cold medicines without knowing first if I could be pregnant. I couldn’t believe it..it was positive (I bought two more and they turned out positive too!). Then it was confirmed by my doctor.

I was really crampy and thought it was my period coming. They said it was perfectly normal but scheduled an ultrasound anyway. So there we were at our first ultrasound. Ahhh to see our baby’s first heartbeats at 6wks. How proud we were…. but in the corner was something else..another BABY! Twins..We were so happy.

The weeks went on and on January 21,2003 at 13 1/2 weeks pregnant with no complications, our world came crumbling down. I woke up that morning to a little mucas spot so I called the doctor. They weren’t too concerned but said if it would make me feel better to come in. So as two different doctors tried to find heart beats, there were none to be found.

I was rushed to the hospital for an ultrasound and as the pictures came on the screen, there were my twins. How beautiful with little heads, hands and feet..but no heart beats! They were identical and shared the same sac. The only explanation that was given to us was that they got tangled in their umbilical cords. One baby was bigger than the other so we believe that he/she lived longer.

We are taking it day to day. Each of us is grieving our own way. And we think of them often. Thank you for hearing our story.

Betty

Loss of Twins

On December 16, 2002, an ultrasound revealed that I was having twin girls. Sure I was shocked at first, but I was elated over the news. I had no idea that twelve days later my beautiful babies would be no more.

On December 25, after opening presents with my family, I discovered that I was bleeding. Fear and dread overtook me. I knew that I should not be bleeding this late in the pregnancy. I met the doctor at the hospital. He checked me, and performed another ultrasound. The babies were fine. He told me to go home and stay on bed rest for a week. However, I continued to bleed throughout the next day.

I started having back pains, but for some reason I did not connect the pain to labor. I called the doctor’s office again. I was instructed to get to the hospital. After examining me, the doctor informed my husband and I that I had dilated 2 centimeters. He told me that maybe they could save one of the babies if they could stop the contractions by suturing my cervix shut.

That wasn’t what I wanted to hear, but the chance of having at least one was better than loosing both. From Thursday, December 26, until Saturday December 28, my doctor did all he could to save my girls. Family and friends prayed throughout the ordeal.

At 10:26, Caitlyn was born. She weighed 15 and 1/4 ounces. Six minutes later Jailyn was born. She weighed 14.9 ounces. My angels were too premature. Their little hearts beat for awhile after they were born, and they tried to breathe. There was no hope. They could not survive outside the womb. I carried my babies for 21 weeks and four days. Up until delivery, I could feel them moving.

I miss my babies every hour of the day. I feel so overwhelmed with guilt sometimes at the loss of twins.

Dee, Alabama

Tragic Loss

My name is Elaine and in October 2000 my husband and I went through IVF and conceived triplets (identical twins + singleton). We were thrilled, yet cautious because I knew the risk went up significantly with multiples. I was very very ill with OHSS* and in hospital for one month with blood clots in my lungs.

I eventually recovered from the OHSS and things seemed to be going along okay when, on February 20, 2001, one of the waters broke and I discovered that I was in labor (no real symptoms other than back ache which I was told was probably going to be normal for me during this pregnancy). Unfortunately, all three of our precious boys were born that day and lived for just a few hours each. We did not see or hold them because we just had no idea what to do and no one really came to talk to us and tell us how important this would be to us or gave us some idea of what our boys looked like. Fortunately, the NICU nurse took pictures, footprints and handprints, and kept their wristbands, etc. so we do have these precious momentos.

In the past year and a half I have done a lot of reading and research on tragic loss, grief, and perinatal bereavement and wish there were some way I could get more involved in helping people in this situation and educating the public. I am doing some volunteer work right now with planning a Walk To Remember to be held in October and I am part of the Parent-to-Parent Support Group in my hometown.

My beautiful boys have taught me so much. Thank you for listening.

Yours truly,

Elaine, Mommy to Rem, Declan and Dawson (b/d Feb 20, 2001 at 21 weeks)

* OHSS is Ovarian Hyperstimulation Syndrome which can occur with IVF. It is caused by the hyperstimulation of the ovaries through medication. When the eggs are harvested the fluid in each follicle leaks into the abdomen (this happens naturally during ovulation). Because of the number of follicles produced, a significant amount of fluid results. When severe, it can cause the body to dehydrate and the blood to thicken. This is why I developed blood clots that went into my lungs (pulmonary emboli).

Elaine has created a website for her sons at: www.geocities.com/fawns2001

Three

The birth of my triplets, and the subsequent loss of one of my three sons occurred in 1998. In my mind, it seems like only yesterday. I gave birth extremely prematurely at 24 weeks gestation shortly after my water broke. My first of three sons was born on April 26th, 1998 at 9:00pm, and he needed to be resuscitated following delivery. I held on to my other two sons for one more day, but then labour started.

I went in for an emergency C-section (because of their positioning) on April 28th, 1998 at 2:30pm. My second two sons had to be ventilated immediately after birth and they were taken to NICU.

Our first son survived for three weeks. He encountered almost every complication related to prematurity it seemed. He fought hard and endured as long as he could. After three difficult weeks, our first baby boy died peacefully in his father’s arms. I still remember that day. It sunk in that we no longer had three sons. Our other sons survived the crucial weeks ahead and we took them home 102 days later.

Thank you for reading my story about my three sons.

Carole, Calgary, Alberta

Loss of a child in utero

After two and a half years of trying, in April 2002, we conceived twins through IVF/ICSI. I had moderate OHSS* so the first month or so took a bit of a toll but we were so excited to be having twins. I had some mild bleeding at 5 & 6 weeks but the doctors believed this was associated to the progesterone I was taking as part of the IVF treatment. At 7.5 weeks it was confirmed that we were having twins.

At 13 weeks we had a nuchal translucency scan** as we did not want to have an amniocentesis (which were advised to do due to my age – 35 yrs). The reason for not wanting the amnio was we did not want risk losing the babies. Twin A had a great measurement of less than 1mm but Twin B had a measurement of 3.2mm, and this situation combined with my age, showed a high risk for chromosomal abnormalities. Even after this news we decided not to do an amnio and that we would look to Level II ultrasound for tentative diagnosis.At 16 weeks we had another scan and it seemed that Twin B had Hypoplastic Left Heart Syndrome, a situation where the left side of the heart does not develop. At 19 weeks, we had another scan and this diagnosis was confirmed. It was also determined that Twin A was a girl – Catherine, and Twin B was a boy – Marcus.

At 22 weeks we went in for a fetal echocardiogram followed by an appointment with the Pediatric Cardiologist. Unfortunately Marcus had died between my OB appointment the week before and the scan. We were aware that there was a high chance that Marcus could die in utero but you have to hope. Three days later I was admitted to hospital and put on bedrest due to a disease I have called adenomyosis. This is like endometriosis but it is only in the uterine muscle and during pregnancy it can cause severe pain when the uterus grows, plus the uterus is enlarged. They did a transvaginal ultrasound 3 days later and found my cervix had shortened and was only 1cm long Consequently, I was put on full bedrest. At 24 weeks, Marcus’ water broke and I was put on intravenous antibiotics. At 25 wks, 2 days I went into premature labour due to a uterine infection, from Marcus’ water breaking. At 12.29am the next morning, just squeaking into the next day, Catherine was born followed by Marcus at 12.30am. Catherine was intubated and taken to the NICU, though not before we heard a couple of little cries from her.

In recovery the hospital staff brought Marcus to us and we had the Chaplain name and Bless our precious little Angel. Afterwards we held him and said goodbye. This is something that meant so much. I needed to hold my much wanted little boy, as did my husband. The nurses took photos of us with Marcus plus photos of just Marcus, as well as little footprints. These were given to us in a beautiful memory box along with the clothing that he had worn. The hospital also gave us a beautiful urn in a box with Raphael angels on. We had Marucs cremated and put his ashes into this beautiful urn. Next Spring we will scatter his ashes on a small island that we love. The pain is always there but I believe that Marcu is watching over his sister and giving her strength to survive being such an early baby.

My advice for those who endured such a loss would be remember that your baby is yours and if you want to hold and see him/her you make enough noise until they bring him (them) to you. Be prepared for the fact that they may not look like the beautiful baby you want them to, but the most important thing is to say goodbye. I miss being pregnant as while I was pregnant I still had my son with me. But all things must come to end and we must move on. I hope that you are able to find strength if you are going through a stillbirth or birth loss. Just remember it does get better. I believe I am lucky to have had Marcus with me for 22 weeks and to still have her sister to love and hold. We will raise her to know about her special twin brother.

Gina in Canada

*Ovarian Hyperstimulation Syndrome (OHSS): is a side effect that can occur during infertility treament with ovulation inducing drugs. In these cases, the ovaries are very sensititve for these drugs and respond with growth of multiple follicles. Symptoms of this syndrome may include ovarian enlargement, accumultion of fluid in the abdomen and gastrointestinal disorders (nausea, vomiting, diarrhoea). Severe cases of PHSS are however very rate (1-2%). In case of multiple follicular growth there is also a risk of multiple pregnancy and sexual intercourse is therefore prohibited. OHSS can be very painful because of the swollen ovaries. (Source: www.ferti.net/library/faq/tretment-5.asp)

**Nuchal translucency scan (NTS): is the swelling just under the skin at the back of the fetal neck. It is important because if the fetus has a greater-than-normal amount of swelling at the back of the neck, there is a high likelihood that the baby will have Down Syndrome or a major heart problem or both. For greater detail on NTS, please visit www.obgynsono.com/nt.html.

Suggestions for Widows and Widowers

Losing one’s life partner is a huge wrench. Not only do we lose a partner, but also a friend, confident, pal, someone whom has walked with us on our much of our life’s journey, sometimes for years. We lose someone we shared children with and now we must journey on alone, without the committed other half of the equation.

The following are some suggestions for widows and widowers to consider when faced with the devastating loss of a life’s partner. It may be possible that you will encounter other situations or feelings. Grief is personal and there is no right or wrong way to grieve. Doing what feels right for you and your children, is the right thing to do. These suggestions are listed in no particular order.

  • Focus on today. Don’t feel that you have to immediately plan the future. If the day is too long, focus on the next hour. Focus on yourself and your children.
  • It is not unusual to experience many different feelings while working through your grief: numbness, denial, fear, disbelief, confusion, anger and panic (how dare they leave me alone with young children!). One widow remarked – “I know nothing of being a single parent. Heck, I know nothing about being a widow.” All of these are normal feelings. You may even laugh at a remembrance or joke, as strange as it sounds, but laughter even when grieving, is a normal human response.
  • If someone offers to help out, either with the children , cooking, errands, etc. accept their help.
  • People want to help and don’t always know how. If you need something, ask, e.g. I’d really love a cup of tea, or could you drive the kids to their swimming lessons? This is no time to feel shy.
  • Keep memories of your spouse alive and allow your children to do the same. You all might fill a decorated jar with pieces of paper on which you and your children have written your favorite memories.
  • Do not feel rushed to clean out your spouse’s clothing, books, photos or knick knacks. Doing so quickly will not relieve the pain and may, in fact, cause even greater pain in the long run as treasured memorabilia are no longer present. Take your time in this matter, there is no rush.
  • Depending upon the ages of your children, you may or may not involve them in the funeral arrangements and/or take them to the Funeral Home for visitation. When not included, children may internalize their parent’s death. Making them apart of the funeral arrangements can be helpful to them in coming to terms with the finality of death, and reassure them that he/she has not moved, or driven away, never to return.
  • Don’t use clichés or euphemisms when discussing death with your children. “Mom/Dad has gone to sleep” may produce a fear of going to bed for your children because they fear the same thing may happen to them. Even using the word “lost” or “gone” can plant the idea that the parent may eventually be “found.” These may increase the children’s anxiety levels. It is perfectly alright to use words like “died” or “dead” to describe what has happened.
  • Watch for scam artists. There are people out there that will willingly take advantage of you. You can be extremely vulnerable over the mourning period. Some people will go as far as to read obituaries to know where to strike next.
  • Let your children know that nothing they did could cause the death.
  • Reassure them as often as necessary, that people die for various reasons, never because of an argument or mean thoughts.
  • Allow your children time to work through their grief. Don’t try to make it go away. Grieving is an important part of life that they will have to experience from time to time. It is part of being a living creature.
  • Make new happy memories together as a family. Start new family traditions. Holidays can be rough but you cannot celebrate every holiday in their memory.
  • Have fun. Both you and your children need to enjoy the simple things. Revel in each others’ company, walk in the rain and blow bubbles in the sunshine.
  • Leave yourself open to new things. Your whole life is still ahead of you, enjoy it and don’t feet guilty about enjoying it.
  • Keep yourself open to new friendships. You may be open to future pain but you are also open to new joys. Be alive.
  • If you feel overwhelmed and cannot find your equilibrium in all of the pain, ask your doctor for a referral to an appropriate grief therapist. Sometimes we might need some help in getting through some of the tougher times. It will be of help to yourself and your children to seek professional assistance if you need to.
  • If you feel that your children may benefit from a children’s bereavement support group, don’t hesitate to ask you doctor for a referral. Connecting with others in a like situation relieves the sense of isolation and can add perspective, e.g. Mom/Dad didn’t die because I was naughty.
  • If your spouse was terminally ill, do not feel guilty if you feel somewhat relieved with his or her death. To someone we love in constant pain and discomfort is very hard to bear. To know that the pain has ended for them can be a relief. This doesn’t mean that we don’t miss them terribly but don’t feel badly about feeling some relief that they are not longer in pain.
  • As impossible as it may initially seem, life can go on without your partner. Enjoying a new life will not erase the love that you once shared.
  • Make sure that you are not in too much of a hurry to find a substitute partner. Someone new may temporarily fill the void or dull the pain but will not make the pain go entirely away. You need to complete the mourning process and forgoing ahead too quickly does not complete the mourning process and quicker.

Adapted from an article written by Becky Burrell.

When a multiple birth parent dies…

I’ve been working with bereaved multiple birth families for many years now and the focus of that support has been about the babies and children. However, two other areas have emerged in the past couple of years: the grief of survivors of a multiple birth situation and, more recently, when a multiple birth parent dies. While any pregnancy can present with difficulties for the mother, multiple birth pregnancies can present with additional risks (see my article Possible Risks to the Mother of a Multiple Birth Pregnancy on this site).

The birth of a child is initially disruptive to all families as they (the parents and baby) must achieve a balance and routine. Add twins or triplets (or more) to the situation and both balance and a routine take longer to work out as each family member is in a steep learning curve. Add the loss of a parent and the situation takes one’s breath away!

The surviving parent, whether Mom or Dad, has to attend to the needs of two or more newborns, make funeral arrangements for their beloved spouse, perhaps attend to other children in the family, maybe deal with work outside the home, deal with their spouse’s grieving parents and make some room to grieve the loss of their partner. Talk about trying to find balance!

Some thoughts come to mind when Mom dies as a result of her multiple birth pregnancy…

  • When a planned pregnancy has gone terribly wrong and Mom has died while the children have survived, the initial feelings are of numbness, shock, denial, “this can’t be happening”, “what am I (‘we’) going to do? How will we cope?” are normal. One can expect a roller coaster of emotions. In addition, it is going to be difficult to push aside grief feelings in order to take care of twins or more.
  • What if I feel that my wife has died and it is the babies’ fault? What if I feel that I can’t love them as a result? These are normal feelings and a natural consequence to such a dire situation where children survive while the parent does not. Over time, the surviving parent will come to love their babies, while still mourning for and loving their wife, the babies’ mother. The mother’s death may have occurred because of her pregnancy, but the babies’ aren’t to blame. Her death isn’t anyone’s fault but rather a painful and very unfair occurrence.
  • Fathers don’t always feel terribly comfortable sitting in a bereavment support circle if they are the only males present. It may be more prudent to connect with another widowed father. Check out a religious affiliation, ask your doctor, or your local Bereaved Families Chapter. Some bereaved fathers have reported that time spent in a social setting rather than a bereaved setting worked better for them and made it easier for them to talk about their feelings. Some social settings to consider are on the golf course, breakfast out, perhaps a picnic with the kids. Use your immagination for what might work for you…and for when either parent dies…
  • Babies need to nurtured, cooed at, smiled at, held, cradled, rocked, fed, bathed and changed. Through these actions, babies learn to trust those who are looking after them and bonding occurs. None of these things may initially be possible as the surviving parent is working through their grief. The surviving parent may experience a need to ask someone else to provide some of the nurturing care of the children for at least a part of the time. The surviving parent may ask the grandparents, other family members or friends to help out. It is important in this circumstance for the parent to stay involved in some part of the babies’ daily care. Sometimes holding a wee baby enables us to grieve, as their small bodies are cradled in our arms or we hold them during a feed. For some, knowing that we are needed can be helpful.
  • Grieving parents need to be kind to themselves. They have received an enormous shock. It will take time, gentleness, support from family and friends to even begin to feel normal again. Expect setbacks. Grief is a journey, not a destination.
  • Grieving parents should not set huge goals for themselves. One step at a time is the best approach: “I just need to feed them this meal; I just need to eat; I just need to rest; I just need to sleep.”
  • The surviving parent should accept all the help they can get. They need reliable, comforting people around them. They may need to defer some elements of the funeral arrangements or babies’ care to someone else.
  • The grieving parent should not be afraid to speak up if they need something. People want to help but they may not know how or what to offer. The parent might ask someone to bathe a baby, take them for a walk, play with them or make the parent a cup of tea, if that is what will help. Asking someone to do the grass cutting or snow shoveling can mean a great deal to a parent faced with the duress of grieving and caring for their children at the same time.
  • If feelings of grief are overwhelming, it is appropriate to seek professional help and grieving parents may benefit enormously from an appropriate professional. Their doctor can either assist directly or provide a referral to a professional grief counselor. Grief is not the same as clinical depression, however, even if it feels incredibly painful. It is a normal human emotion and the goal is to mourn rather than stifle feelings. Surviving parents faced with the demands of grieving and simultaneous child care may really only grieve when all the work is done and the children are asleep. In other words, grieving may occur in spurts rather than continuously because of the unique life situation in which the loss has occurred.
  • The grieving parent may find it very helpful to have a safe place to speak about their feelings. They may wish to join a bereavement support group in their community. Sometimes, however, grieving people do best when they mourn on their own in a private space. Indeed, there is no formula for mourning that fits everyone.
  • The surviving parent should go forward slowly. They should expect setbacks and realize that adjustment will resemble a roller coaster more than a steady incline. Bursts of sorrow will occur, sometimes at very unexpected moments. That’s normal. The surviving parent must take it one day or hour at a time.Over time, there are other things to consider for the surviving spouse ..
  • It is advisable not to clear out their partner’s clothing or personal items in a hurry. Doing so will not relieve the pain and may, in the long run, cause more grief as cherished memorabilia is donated or given away in haste.
  • Leaving out photos of the lost parent and speaking to the children about them is very important for helping children process the grief of a parent they did not know. Relating how much both parents looked forward to the children’s births, how each considered names for them, how much the parents both looked forward to being a family is important for the children to hear. Such communication and openness about the lost parent helps children fill in gaps in their own identity and promotes self development. It will make it less likely that they will feel guilty for their parent’s death.
  • Expect your children to ask all sorts of questions regarding the death of their parent. If the surviving parent doesn’t feel capable of answering them (example: Why did Mommy die?), the parent can respond that they will think about it and answer the child later. Counselors or bereavement groups can provide assistance on how to answer difficult, pointed questions from children. A medically accurate answer, using appropriate words for the age of the child, could also be a good approach. Even when there are more than one survivor of the multiple birth, such questions are usually posed by one child at a time. Of course, the same question may be posed by another in the future or by the same child who has a need to hear the same answer once again.
  • The goal of mourning is to find our way back to life with its joys and challenges. Children who have lost parents in infancy need to laugh and enjoy life as much as any child. It is the surviving parent who must lead the way. It is OK to laugh and to have new possibilities, new experiences.

Organizations

 

By Lynda P. Haddon and Arthur S. Leonoff Psychologist/Psychoanalyst/Training Analyst

The death of my identical twin sister

Hello, My name is Marsha Sherly, identical twin to Marilyn Sharon, who killed herself two years ago. I am 57 now. We had a triplet-like sister born a year after us. We were all born in the month of August. That sister killed herself when she was 27. Our parents did not want to have triplets, or kids for that matter.

I would love to meet triplets or twins or twinless or tripletless people. I never met a triplet in my life and really do want to.

I live by the beach in California and love to paint pictures of twins and triplets. I deal with the death of my twin through painting. I paint for a chiropractor and he gives me my treatment for free. Marilyn and I were (each) born with serious back problems.

I am very friendly and would love to meet you. I belong to the twinless twin club. I met a twinless twin named Monica and talk to her every day.

Thanks for listening. I am suffering a lot without my twin. We did everything the same for 55 years. I feel brain dead without her.

Marsha Harris

Growing Up Twinless

Hi, I wanted to take the opportunity to share my story of what it’s like to grow up twinless. The few accounts I’ve read of before echo thoughts and feelings I have had and have helped me to replace some of the confusion with understanding. I hope that my sharing is able to help someone in some small way such as I’ve been helped.

My story begins around my sixteenth birthday when, for some unknown reason, I seemed to have hit a crisis point. I think it was the thoughts of suicide that really brought me to a point that things were as bad as they seemed. All I knew was what I told my mother on those many evenings when I would seek her out in the hopes that she might help me out of my pain. She would usually be ironing or doing some other household chore when I would enter the room and make my presence known. That’s about all I seemed able to achieve because when I tried to say something, the words wouldn’t come out. There were a couple of times though when in between the tears, I’d say “Mom, I don’t think I was made for this world.” I hadn’t found out yet that I had been one of twins and that my brother had died while still inutero. I could feel that I was creating an awkward situation for my mother. She told me later that she felt deeply for me, but just didn’t know of anything to say or do to make me better. Often, I would become angry with her.

For years, when I seemed to reach bottom, I would seek her out or someone else I thought that might be able to help me. I saw ministers, counselors and even tried to talk to a few friends, but I often walked away feeling more frustrated than anything. I did have this Sunday School teacher named Carol, who incidentally was a twin, whom I really bonded with. My own mother oftentimes became jealous and said many painful things that would keep me home in my room, alone, rather than with Carol. Though, as with the others, I couldn’t talk to Carol, I did feel something akin to a soothing effect around here.

The series of events that led up to me learning about my twinship began when a friend of mine suggested that I go to see this lady who was a psychic. Having come from a very religious home, I at first felt like this wasn’t an option for me, but I was desperate for someone to help me and so any hesitation I had soon melted away. I took my friend’s offer up and copied the lady’s phone number down. From a pay phone, I called her up to schedule a sitting and she gave me the day, time and place. I hung up, not placing very much hope in what I might encounter, but then a little hope was better than none.

I showed up at designated place and time and have to say that my first impression of things wasn’t a very good one. I could’ve just left, but I thought ‘I have nothing to lose’ so I stayed. And just in case she
might actually be psychic, I told her on our way back to her kitchen that I didn’t want to know anything about my future.

After I sat down opposite her at the kitchen table, she took out a set of regular playing cards with alot of marks on them. I didn’t know what the marks meant, but wondered for a minute where I could get a set 🙂 She had me separate them and then she shuffled them and laid them out into groups. She asked if I was going to become a minister, to which I replied “My parents would like me to.” She moved on to describe my parents and did a pretty good job, but still, I felt that she could have gathered all this from my demeanor and what had transpired from the moment I walked through the door.

Then… She told me that I had died near the beginning of my life. I was shocked! How could she know this? I knew that 8 hours after I was born my lungs collapsed and I had a near death experience that lasted 4 1/2 minutes. I confirmed her claim and listened on. She then stated that my mother was in labor for almost two weeks after I was born. I never heard of this and so I couldn’t confirm or deny it so she asked that I check with my mother and get back to her. Next, she asked if I had a twin. Again, I told her that my mother never said anything about a twin and again, she asked me to check with my mother and get back to her. She said that she was going to continue despite my uncertainty. What follows was her telling me that I did have a twin and that originally, I had been the one that had died and he the one that lived to be born and then undergo that near death experience I mentioned earlier. She told me that we were both there when the doctor was resuscitating him and that he had let me come into the body. Everything she said seemed to turn my world topsy turvy, but yet it was a world [which] resonated with me.

That night, I had dream. I was lying in my bed and feeling so alone as I usually did when I felt this brush against my arm. I didn’t need to look over because I could feel him. The only way to describe the experience was of everything that moved in me, all my feelings of lonliness and confusion, came to rest. This image came to my mind of this necklace with two pieces that had been broken into shards had come back together.

I rolled over and used my arm to raise my head as I looked at him. I asked “Who are you?” He replied “You know who I am.” I laughed. “yeah, I know who you are.” I said. I asked “How long have you been here?” He said “I’ve always been here.” I responded “Yes, I think I knew that.” Just then I yawned and he said “you’re tired. you should get some sleep.” I said “oh no, if I close my eyes, you’ll go away.” He said “No, I’ll always be here.” I did end up falling asleep by his side and then while still dreaming, time had passed so that it had become morning. My mother came into to wake me up, but in the course of the night I had fallen off of the bed leaving him to be the one she woke up. When I had heard her come in, I had stayed low so she couldn’t see me. After she left, we laughed that she had confused him for me and then the scene changed again and it was getting dark suddenly. I found myself out on our front porch looking down at my watch. The dream scene began to fade and I heard his voice saying “I’ll be back.”

While I was afraid during the first day to ask my mother about the things the psychic lady wanted me to, after the dream, I just had to know the truth and so, during a car ride to my grandmother’s house, I asked her.

I began with the question “Mom, were you in labor after I was born?” She jerked the staring wheel sending us off onto the birm as she turned to look at me in the back seat. “Who told you?” she asked me. I said “This lady.” She said “Yes, I was in labor, for almost 2 1/2 weeks.” “After you were born, the doctor had left the afterbirth in me,” I spoke over what she had said next as I then asked “Did I have a twin?”

She answered in the affirmative telling me that after being rushed to the emergency room because she couldn’t walk anymore, the doctors had removed the afterbirth and later reported to her that there had been a second baby, fully formed, but [whom] had stopped growing.” She told me that she never told anyone, not even my father about my twin. I came clean then about having visited this psychic lady who told me this and rather than getting chastized, was meant with a response that was more like awe and wonder about who this lady was.

Over the next 18 years (I’m now 34) I would have my mother repeat the story of my and my brother’s birth because it all still feels so unreal. Yet, I can feel its truth in my heart and over the years have come to make sense of much of my feelings and thoughts that seemed alien to me before. For instance, since I first encountered a black rose and its significance (age 11), I had alway requested one for my birthday. It was just one more thing that confirmed my grandmother’s statement that I was a strange child. I also had/have the habit of buying two pairs of shoes, two shirts, all two of the same. Even knowing what I know today still isn’t enough to squelch it. There’s also my odd habit of oftentimes referring to “we” rather than to me. I don’t really seem to be aware of this until it is brought to my attention by others. When I was around 12 years old, I remember reading this book called “Sybil” about a woman with multiple personalities and I would then go around telling people I had multiple personalities. Actually, I didn’t bear any of the symptoms of the disorder, but there was this one thing that Sybil reported and that was that she felt double. It was the only way I knew then to express how I felt. Of course, this too would startle my parents and relatives who just thought I was overly imaginative and had odd interests. Fast forward to when I turned 32. Since finding out at 16 years old that I had a twin brother, I found some measure of peace and understanding say for instance, of why I was always seeking out some other guy to bond with (an attempt to find a surrogate) or spending my last dime to buy a second pair of something that I didn’t need a second pair of.

It was at 32 though, that a lot of unrest came back to me. I could see that over the previous 10 years I had been struggling with issues of identity and career. And then there was this feeling, a pulling that was always present and would intensify whenever I wasn’t doing anything. So I would keep busy, but I could still feel it there dimly in the background. I knew what it was and it brought up all these thoughts and feelings. On one hand, I would ask myself if my twin were here, would he approve of me and what I did? What would it be like if he were here now or if he had been here instead of me? On the other hand, I wanted to deny him. How could someone I never knew have so much of an impact on me? I get angry and I don’t understand this. Yet I still have my mother recount the words she spoke so many times before “the doctor said there
had been a twin but..”

Last year, after a particularly difficult weekend, my mother had returned from a trip so excited to see me because of something she had wanted to share. She had been unaware of my depression the night before, of wondering what life would have been like if he had survived. She told me that in a dream she had the night before, that she and my father were returning from the casino when she was entering into the restaurant at the hotel when she was told that a table was being held for her. As she walked over to where it was at, she saw this guy from behind and when she got nearer he turned. She gasped she said because here was this guy who looked exactly like me, yet sheknew that I was not there because I had to work. She asked him “who are you?” and he smiled (she said she has my smile). He said his name was Nathaniel. She told him to wait right there while she went to get me, but as she walked away she woke up. Upon hearing this, I got this strong sense, as if he is somewhere living his life and though we are apart, we are each living out our lives to their completion until the day we won’t be separated again ever.

Today, I live day by day. With the help of Twinless Twins and opportunities to share my story I find some quieting of the pulling within me. It’s a compulsion I have to share with others, my twinship, not letting people miss this very important part of who I am despite the fact they might not be able to see otherwise. Sometimes, I feel as if I am leading two separate lives. Currently, I work as a dorm parent at a boarding school, but during the summers, spend an inordinate amount of time in Quebec volunteering.

There is the “French” me and then there is the “English” me. Though it can be exhausting at times, it feels natural and right. Yet there is still something that doesn’t seem quite right. When I come to think of a wife and children, which I feel my life incomplete without with, I can’t imagine any other person in my life meaning as much to me as my twin.

Because of this, I seem to be frozen in the feelings I come to have for others.

What the future [will] hold for me, I’m not sure. But despite my many struggles, including my struggle to believe in an afterworld and an existence beyond physical death. I hold onto the last words I heard in that dream before I awoke. “I’ll be back.”