0

Vanishing Twin Syndrome (VTS), Part 2

This article is for information and overview purposes only and does not represent every possibility or situation.  If you are concerned about any aspect of your pregnancy, please consult your doctor as affects your particular situation.

The use of diagnostic ultrasound imaging has made it possible to determine as early as five or six weeks that Mom is pregnant. Ultrasound (US) picks up the fetal heartbeat(s) allowing the medical team to also determine how many fetuses are present. In some cases, two or more fetal heartbeats can be found leading to excitement and some trepidation for the expecting parents. The use of US to determine pregnancy at such an early stage, however, has also identified another issue which might occur known as Vanishing Twin Syndrome (VTS).1  For women experiencing VTS, during a subsequent US (up to about 12 weeks gestation), one or more fetal heartbeats may no longer be found. The empty sac may, or may not, be visible on the screen.

In years past, women had their first US after the 12th week of gestation therefore eliminating the possibility of knowing that they were initially carrying more than one fetus. The availability of US as early as the 5th week of pregnancy has allowed researchers to conclude that the rate of multiple-birth conception is much higher than previously thought. It is estimated that one in eight people may have started as a twin, but only one in seventy pregnancies actually resulted in a twin birth.2  VTS usually has no symptoms, but sometimes a pregnant woman might have unexplained bleeding, cramping or passage of tissue in the week(s) in her first 12 weeks of pregnancy. Such symptoms could indicate the loss of a multiple pregnancy, a blighted ovum, or in some cases nothing at all. Not all cases of VTS are associated with any outward signs and many women continue with an uncomplicated pregnancy and the birth of a healthy child(ren).

VTS does not just occur with twin pregnancies, but can occur within higher order multiple sets as well. The loss of one, or more, embryo in the first trimester can be emotionally devastating for expecting parents. For example a couple was 8-1/2 weeks pregnant with triplets when they registered for a multiple-birth prenatal class.  When they arrived for the class at just over 13 weeks pregnant, they advised that a subsequent ultrasound had shown that they were now carrying two babies, and an empty sac had been visible on their latest ultrasound.  The couple had a difficult time because two other couples in the group were carrying triplets and they realized they were no longer part of that special group.  In such cases, referral to counseling may assist expecting parents in dealing with their early fetal loss and allowing them to celebrate in their continuing pregnancy.

Risk factors for experiencing VTS are generally unknown but seem to include a maternal age over 30. If the vanishing fetus occurs in the first trimester, as it does in most cases, no medical intervention is usually necessary. The mother, the placenta or the surviving co-multiple may absorb any miscarried fetal tissue within a few days.

VTS does not generally affect the ability of a woman to conceive again, although there could be underlying genetic or health issues that should be explored with a physician.

While VTS usually poses no problem physically for the mother or the surviving child(ren), it is not uncommon for mothers to have feelings of disappointment, grief and loss as they had anticipated and looked forward to a multiple-birth.3  As the pregnancy continues with at least one healthy child, these mothers may be told that the loss isn’t important or to focus on their healthy baby. It can be difficult for mothers to find acceptance or a safe place to grieve this loss as family and friends fail to understand that a unique parenting experience has also been lost as well as a much-wanted child. Women and their partners experiencing VTS are encouraged to seek counseling if feelings of depression, sadness, or anxiety continue.  Local and national parenting support groups may offer networking opportunities for parents who have suffered from VTS.

Vanishing Twin Syndrome (VTS), Part 1

See Part 1 of this article, Vanishing Twin Syndrome (VTS)

References

1) De la Fuente, G., Puente, J., Garcia-Velasco, J., & Pellicer, A. (2011). Multiple pregnancy vanishing twin syndrome. In Biennial Review of Infertility (pp. 103-113). Retrieved from http://link.springer.com/chapter/10.1007%2F978-14419-8456-2_9?LI=true

2) Heim, S. (2007) It’s Twins! Charlottesville, VA: Hampton Roads Publishing.

3) American Pregnancy Association. (2007). Vanishing Twin Syndrome. Retrieved from http://americanpregnancy.org/multiples/vanishingtwin.html

Additional Resources

Mothering Multiples, by Karen Kerkhoff Gromada, La Leche League International

The Art of Parenting Twins, by Patricia Maxwell Malmstrom and Janet Poland, Ballantine Books

Twins! Pregnancy, Birth and the First Year of Life, by Connie L. Agnew, Alan H. Klein and Jill Alison Ganon, Harper Perennial

0

Loss in Multiple Birth

In spite of everyone’s best efforts, there is a chance that you may lose one, more or all of your babies. In an effort to assist you face this difficult time, to guide you when you have to make certain difficult decisions (e.g. whether or not to see or hold your baby(ies), taking pictures, funeral arrangements) and offer ideas on how to deal with others’ remarks, the following has been prepared. May you find some comfort from these suggestions.

Vanishing Twin (occurs by about 12 weeks gestation)

Vanishing Twin occurs when at least one embryo does not develop probably due to the fact the embryo was not able to properly attach itself to the uterine wall to get the maternal nutrition it needed to properly grow and develop.  The embryo dies and is reabsorbed by the placenta or the mother’s body.  Vanishing Twin is not anyone’s fault.

Miscarriage (occurs up to 20 weeks gestation)

If you have lost your babies through miscarriage, you may feel empty or angry with yourself and let down by your body. You may blame yourself, your actions or attitudes or even that glass of wine or cup of coffee. You may find that friends, family or hospital staff don’t acknowledge the pregnancy or the depth of your grief. Remember, this has been a very real pregnancy for both you and your paratner. You have visualized the babies, ‘taken them for a walk’, ‘bathed and dressed them’, amongst other things.

You might wish to try to find out why your miscarriage occurred. Be prepared for the fact that there might be no definite answers. Try not to feel guilty. Talk openly about your feelings and the babies with a caring person. If desired, maintain some contact with the your local twin and triplet support club until you feel ready to let go.

Stillbirth/Infancy (after 20 weeks gestation)

Prematurity is still the leading cause of death in a multiple birth situation. There is no guarantee against the early delivery of your babies. In spite of the best precautions, it can still occur.

Grief can occur on two levels: at one level, the loss of a unique type of parenting experience; and the other the loss of your baby(ies). The emotions experienced can be varied and sometimes not even feel as if they make any sense: “Did I prefer one baby over the other?”, “Did I really only want one?” Be sure and talk about your feelings with a caring person. You may experience inner struggles as you try to deal with the joy of the birth of one baby and the loss of another. You may wish to push all thoughts of the dead baby from your mind and concentrate on your living baby(ies). You may be subjected to thoughtless remarks from family or friends – ‘you couldn’t have handled triplets anyway.’ ‘At least you still have a baby.’ ‘You have some babies who need you, get on with it!’ It is helpful if you take time to grieve your loss. We cannot move forward until we have grieved what we have lost. Children are not interchangeable and we cannot ignore the death of one because others have survived. Don’t be shy about reminding others that you have lost a baby(ies) and have every right to mourn for him (them).

Some important feedback received from bereaved parents:

  • Name your baby(ies)
  • See your baby(ies) if you can. Hold them, touch them, bathe them and dress them. Take all the time you need. Such contact helps with integrating the fact that your baby is dead. We cannot say ‘good-bye’ before we have said ‘hello’. The majority of bereaved parents find solace, comfort and some healing in seeing their baby(ies). Some grieving parents do not want to see their baby(ies). Don’t be talked into anything that you do not wish to do or which does not feel right for you. Whichever works for you is right way to proceed.
  • Take photos. Take pictures of your babies together and alone, as you wish. The photos can be put away until such time as you feel you might like to look at them or, if you feel unable to take the photos yourself, have a hospital staff member or good friend take some.  Over time, some parents report the photos help acknowledge that their baby(ies) really did exist.  These photos can also become very important for the surviving co-multiple(s) in understanding about their beginnings.
  • Ask any questions of your doctor that you might have. Ask until you have answers that you understand. Be prepared, however, for the fact that some questions may have no answers.
  • Plan the funeral or memorial service as you wish.
  • Don’t keep feelings bottled up inside of you. Talk with a caring person whenever you need. Join a local bereavement support group. This is important for both Mom and Dad/Partner.
  • As the parents, try to spend set aside some time to spend together to share your grief and lost dreams.
  • Be prepared to have ‘set backs’ – this is normal. We are not the same people we were before the death. We need to get used to a new reality. The loss of child stays with us forever and we need to learn how to incorporate our grief into our everyday lives so that we can keep on living. Be prepared to have grief feelings triggered for no seemingly apparent reason. Don’t ignore them. It is only by going through these painful feelings that we can eventually begin to feel any peace.
  • You may wish to think about including older children in the funeral in a meaningful way:  draw a picture, pick out the burial outfit, and such.
  • Try to include the grandparents in some meaningful way in either the funeral or memorial service. They too have a lot to deal with. They have lost a grandchild(ren) and in addition, have not been able to protect their own children from such terrible pain.

There are many good books available on grief.  Check your local Library and perhaps the library of your local twin and triplet support Chapter. Many are available on line at Amazon.com  In addition, Multiple Births Canada has written two booklets on loss and they are available from their Business Office. Multiple Births Canada also has a Loss Support Network which issues a monthly e-newsletter (except December), has confidential e-mail connection between the members and can refer you to appropriate support persons. If you already belong to a member Chapter of Multiple Births Canada, there is no charge to join the Loss Support Network although a donation of your choice to help defray printing and web site costs is greatly appreciated.

Please don’t feel alone in your grief. There are many caring people available to assist you.

Other Support Contacts:

1

Multifetal Pregnancy Reduction

Note: The term used by the International Society of Twins Studies (ISTS) is “Multifetal Pregnancy Reduction” and is the one used here. For the Reader’s information, this procedure may also be referred to as “Selective Reduction”.

Couples who are expecting three or more babies may wish, or be advised, to consider reducing the number of viable fetuses to two. The reduction procedure is usually performed between the 10th and 12th weeks of pregnancy by injecting one or more of the fetuses. Fetal reduction increases the chance of a mother having one or two healthy babies instead of a miscarriage or very premature delivery of three or more babies who are much more likely to die or to suffer from long-term disability.

The balance of risk and advantage will be different for each couple but nevertheless for all there will be a sense of responsibility and much anxiety. For couples considering multifetal pregnancy reduction, there are additional issues that compound their anxieties.

Firstly, many couples have struggled with becoming pregnant, sometimes for years. Here they are pregnant, with some type of fertility assistance, but they are carrying triplets, quadruplets, quintuplets, sextuplets or more. To now have to consider reduction (killing?) of some (or even one) of the babies that they have strived so hard to conceive, goes against all of the time, energy, disappointment, heartbreak and money that was invested in getting pregnant in the first place.

Secondly, when it is determined that there are three or more fetuses, the timeframe for the multifetal reduction choice is often very narrow, sometimes as short as only 3 or 4 days. In that small window, the parents have to learn all they can about the procedure, perhaps connect with others who have had the procedure, learn about the risks to mother and the remaining fetuses and come to grips with losing (aborting? killing?) one or more of their unborn children. This is enormous pressure to endure, to come to terms with and to decide upon in a few, short days.

Thirdly, and as yet perhaps one of the most unstudied and unrecognized issue, are the possible long term psychological effects on the parents and by extension, the children as well of choosing a multifetal pregnancy reduction procedure. Some of the questions that have been bandied about my parents having had the procedure are: “Did we kill our son?” (this from parents who had two beautiful daughters from a triplet pregnancy); “Am I a murderer?” “How and when do we tell the others (surviving children)?” Some parents have reported fantasizing about the baby(ies) that was reduced and wondering about the sex of that child(ren), if they would have looked like their co-multiples and even if they should tell the siblings about the reduction. Some parents have named the reduced child(ren) in an attempt to come to terms with their decision and to find some peace regarding this socially unrecognized loss.

Regarding telling the other children about the procedure and what it could entail, once again the answer will be individual and personal. If you have shared with other family members that you are carrying many fetuses and are considering multifetal reduction, then have the procedure and wish to keep hush regarding your decision, it may already be too late. If parents choose not to tell their surviving children but have conferred with other family members regarding the procedure, then there is always a risk that someone will tell, even inadvertently, your surviving children. Secrets in a family are extremely hard to keep and usually fester and erupt at a most inopportune time and sometimes awkward moment. It stands to reason that parents considering the multifetal reduction procedure would want to confer with other family members who love and care for them, as they struggle with emotions, guilt, worry and anxiety over their babies. To share personal information and then to expect silence may be too much. A child who discovers, from someone other than his parents, an important piece of his history can become confused and angry regarding this important piece of his life which has been kept from him.

With families being more open these days and encouraged to speak of their dead baby, this could be helpful all around. It is usually better for children to know from the start that they were once a part of a set. The reaction of each child will be unique and personal and parents will need to provide age appropriate feedback and information to their children’s questions. The beauty of this approach is that, a child asks at his or her own rate and in a manner that meets his or her needs at that time. Expect questions at all stages of their lives.

When considering multifetal pregnancy reduction, there are many questions and the answers will need to be considered individually and as will affect each family’s personal situation. Here are a few common questions:

I am expecting quadruplets and am being asked to consider reducing to twins. I know it is possible to carry healthy triplets, what do we do?

You are correct, many families have carried triplets to a healthy outcome. There are many considerations and only you, your partner, informed healthcare professionals, perhaps other multiple births parents, genetic counselling can help you reach a decision.

Some things you might consider:

Ascertain the health risk vis-à-vis the mother and all of the babies. If one (or more) fetuses have anomalies, you may feel that reduction is the decision to make, thereby giving the healthy fetuses a better chance at a healthy gestation and life.

Learn the survival statistics

  • 70% of quadruplets survive. Of that figure, 50% of them have disabilities ranging through a series of impairments such as blindness, to cerebral palsy. The average gestation for quadruplets is 28 weeks.
  • 85% of triplets survive and 10% impairment rate can be expected, with an average gestation of 30-33 weeks.
  • 98% of twins survive with a 5% impairment rate and the average gestation is 35-38 weeks (NOTE: a singleton gestation rate is based on 40 weeks).*

*Statistics quoted from research paper by V.M, quadruplet Mom who reduced to triplets and gave birth at 34+ weeks to three beautiful, healthy babies. Their weights ranged from 3.12 lbs. to 4.9 lbs. and the family brought them home from the hospital within 15 days.

Did we do the right thing?

This is such a difficult question and there are no easy answers. Even though the timeframe for decision whether to have the procedure or not is so short, be sure and do your homework. Below are some Internet Sites to visit, talk to other families who have considered the procedure, learn as much as you can about the procedure and the possible ramifications. Knowledge is Power and permits you to make the best possible decision for your personal situation.

I must go back to V.M. thoughts and wisdom. As V puts it:

Someone once said to me “make the decision from your head, not your heart”. I agree with the intent of that comment. An informed decision is the best decision. However, you can never really feel good about such a decision, and you will never be 100% certain of your choice. You can survive this and one day you will be at peace with it. Recently I was able to answer a question that had tormented me from the beginning. “How do I ask forgiveness or understanding from that lost child – the one I never gave a change at life?” The answer – there is no need to ask for forgiveness for a child loves unconditionally. The love we have for that child was and is equally returned. It was through love that my husband and I conceived and it was with love that we reduced. It is the love not the loss that I chose to hold onto. Somewhere between your head and your heart, what you know and what you feel, you will find the answer. Allow yourself to listen to both.

We have lost a child(ren). We hurt so much and we cannot share nor openly talk about our pain.

Multifetal pregnancy reduction is one type of loss that is nearly impossible to ‘share’ with others let alone have them fully understand the anxiety and dilemma that has been faced. We conceived many babies and chose to reduce one (or two, or three). While our dream has been drastically altered, we may choose to keep our personal feelings to ourselves and if not, our loss(es) may not be acknowledged, recognized or even fully understood by others in a manner that we might feel fitting or helpful. A sense of isolation coupled with the grief of the new reality can combine to make the pain greater.

It may not be unusual, like a miscarriage, for others to have difficulty in relating to your loss. “Well it wasn’t a baby yet” or “you have others” may be expressed to you. Try and find a caring and understanding person to share your pain and grief with. It might be a special friend, grief counsellor, religious leader, family doctor or bereavement support gorup. Grief is personal and knows no timetable. Grief is a journey not a destination and may require some support at different stages of your life. It is important to recognize the pain, possible feelings of guilt and grief and to work with them, address and acknowledge them. Only then can we move on, forever changed and with a new reality. Don’t be afraid to cry or seek appropriate professional support, if need be.

Sources

Bereavement: Guidelines for Professionals, These guidelines focus on the particular issues raised by the loss of a twin, triplet or more by Elizabeth Bryan, MD, FRCP, FRCPCH and Faith Hallett, The Multiple Births Foundation
Selective Reduction: Research Tools for an Informed Decision, by V.M.
Twins! Pregnancy, Birth and The First Year of Life by Connie L. Agnew, M.D., Alan H. Kein, M.D., and Jill Alison Ganon, 1997, Harper Perennial

1

Vanishing Twin Syndrome (VTS), Part 1

Vanishing Twin (VT): Frequently Asked Questions (FAQs)

To my surprise, the Vanishing Twin article is the most hit-on article on my Site. Due to very early ultrasounds (5 or 6 weeks) we learn early if we are pregnant and with how many. By about week 12, things can drastically change. Following are some FAQs on Vanishing Twin:

LYNDA IS NOT ABLE TO ANSWER MEDICAL QUESTIONS. ANSWERS PROVIDED ARE GENERAL IN NATURE AND MAY NOT APPLY TO YOUR PARTICULAR SITUATION. IF YOU HAVE ANY CONCERNS AT ALL ABOUT YOUR HEALTH OR YOUR PREGNANCY,PLEASE CONSULT YOUR DOCTOR!!

Q – How long will I continue to bleed?

Ans: Each woman is unique as is each pregnancy, even for the same woman.  Duration of bleeding can depend upon when VT occurred. For example if it occurred at 7 weeks, a woman may not bleed as long as if it occurred at 10 weeks. Some women don’t bleed at all and their body reabsorbs the VT tissue with no outward indication of the loss.

Q – Will the VT hurt the other baby (ies)?

Ans:  In the majority of cases, if the other baby(ies) is healthy, it(they) will be fine. Your doctor can confirm, through ultrasound and fetal monitoring, the health of your remaining baby(ies). Generally there will have be no difficulty as the pregnancy progresses through to a healthy birth.

Q – Will there be any evidence left at the birth of the survivor?

Ans: Usually at birth, there is little if anything left of the VT. There might be a “thickening” of a portion of the placenta.  It depends upon when the VT and the birth of the surviving baby occurred as to whether or not the VT is visible. For example: if say the VT occurred at 8 weeks and the birth of the survivor occurred at 39 weeks, there is little chance of any remaining physical evidence of a VT. If the VT occurred at 12 weeks and the survivor is born prematurely, say at 32 weeks, then there may be some evidence of VT or there may not.

Q – What caused the VT? What did I do wrong?

Ans: It isn’t fully understood why VT occurs but it can be surmised that an embryos did not properly attach to the uterine wall and therefore failed to receive adequate nutrition to grow and develop. As can be appreciated from the scenarios mentioned in Ques. No. 3, there can be little to study after birth in order to ascertain why a particular pregnancy failed to produce healthy multiples. Early ultrasounds (at 5 to 6 weeks), can indicate a woman is pregnant and with how many. Two decades or more ago, the first ultrasound occurred much later in a pregnancy, about 16 to 20 weeks, well past when a woman would have known that she was initially carrying two or more. As a result she would have no knowledge that she had been carrying more than one.  It is generally felt nowadays that many more of us begin life as twins than was previously thought. What can be assured is that VT isn’t anyone’s fault and neither parent did any thing wrong.

Q – How long will it take for the empty sac to be reabsorbed by the mother’s body?

Ans: Each case is unique and needs to be evaluated on an individual basis. Your doctor is the best person to advise you for your particular case.

With ultrasound, it is now possible to know as early as five or six weeks that you are pregnant. However, with these first trimester, early ultrasounds an interesting side effect has occurred. The early ultrasound confirms two or more fetuses and a subsequent ultrasound reveals the ‘disappearance’ of at least one of the fetuses and an empty sac may be visible. This ‘disappearance’ is called Vanishing Twin.Researchers now suspect that many more multiples are conceived than previously thought and unexplained bleeding early in the pregnancy may be the miscarriage of a multiple. In the past, women usually had their first ultrasound later in their pregnancy (after 12 weeks pregnant) and therefore would never have known that they were carrying multiples. Nowadays the use of early ultrasound (in some cases as early as five weeks pregnant) can confirm a multiple birth pregnancy, while a later ultrasound confirms the loss of one or more of the babies. While not all cases of vanishing twin are associated with bleeding, this may explain why some women experience some cramping, bleeding or passage of tissue early in their pregnancy, but nevertheless the pregnancy continues, is uncomplicated and culminates with the birth of a healthy child(ren).

Vanishing twin can also occur within higher order multiple sets. I made an initial contact for registration for multiple birth prenatal classes with a family 8-1/2 weeks pregnant with triplets. When they arrived for the first class at just over 13 weeks pregnant, they advised that a subsequent ultrasound had shown that they were now carrying two babies and an empty sac was visible on the ultrasound. This family had very sad feelings because two other families in the class were carrying triplets and they should have been part of that group.

It is not uncommon for families with vanishing twin to experience feelings of sadness, grief and loss as they had anticipated and looked forward to a multiple birth.

It is not clear why one (or more) fetus fails to develop and is either miscarried or reabsorbed into the mother’s system.

For additional information, please see Vanishing Twin Syndrome, Part 2

Some Resources on Vanishing Twin

Twins! Pregnancy, Birth and the First Year of Life, by Connie. L. Agnew, Alan H. Klein and Jill Alison Ganon, Harper Perennial
Multiple Blessings, by Betty Rothbart, Hearst Books
Double Duty, by Christina Baglivi Tinglof, Contemporary Books
Mothering Multiples, by Karen Kerkhoff Gromada, La Leche League International
The Art of Parenting Twins, Patricia Maxwell Malmstrom and Janet Poland, Ballantine Books

Website: www.vanishingtwin.com

Please Note: I am unable to answer any medical questions. If you have any concerns regarding your medical situation, please check with your healthcare professional.

Additional information about ultrasounds and sonograms – particularly relating to diagnostics, exposure principles, and the role of an ultrasound technician – can be found through a variety of medical resources.

0

Miscarriage

Miscarriage is the unplanned ending of a pregnancy before the 20th week of the pregnancy. 15 to 20% of all pregnancies end with a miscarriage. 75% of miscarriages occur within the first trimester (12 weeks) for several possible reasons: improper attachment to the uterine wall, imperfect fetus either genetically or more usually, by a chance mutation of cells at the time of conception. 25% of miscarriages occur during the 13th to 20th week. Usually the fetus is normal but there may be other problems: improper attachment of the placenta, uterine difficulties or an incompetent cervix.

There may be several reasons for a miscarriage as discussed above or a mild virus, more serious disease or infection may be the cause. Environmental facts and malnutrition of the mother are two more possible causes.

Many times there are no definite reasons for a miscarriage and we, who prefer answers, may have some difficulty in coming to terms with that fact.

If you lost one more or all of your babies through miscarriage, you may feel empty, angry or let down by your body. Even worse, you may find that family and friends don’t properly acknowledge the pregnancy or the depth of grief. In fact, society tends not to think of miscarriage as a real loss. People tend to think that because you didn’t know the baby, you shouldn’t feel too sad. The loss is downplayed and the parents are often advised to “try again.” If parents are to have any hope of healing, many of those whom have dealt professionally with pregnancy loss or studied it, agree that parents need to grieve their baby’s loss if they are to heal.

If it is possible to see your child, ask the hospital staff in this regard. They are best suited to advise you. Even if the baby can’t be viewed, it might be wrapped in a blanket and brought to you to hold. The physical sensation of holding your child gives you tangible memories of the baby’s real existence as a part of your family. Other mementos, such as copies of early ultrasound photographs of the multiple pregnancy with all fetuses intact, are cherished by many families.

If it is not possible to see the baby due to the miscarriage at too early a stage, it still may be possible to arrange formal burial or cremation with the cooperation of the hospital and a funeral home. If this is not an option for you, it is helpful for many families to hold a memorial ceremony, either officially with religious involvement or personally with only family and friends. You might decide to plant a tree(s) in a special location in memory of your child(ren).

It is important to find a safe place to grieve your loss. You may join a bereavement support group, see a therapist who specializes in pregnancy loss issues, find a caring friend or relative to share your feelings and emotions. Research has shown that parents who do not talk about a tragedy pregnancy take much longer to resolve their grief.

Women usually will grieve longer than men and want to speak of the miscarriage for weeks or months afterwards. Mothers may be receiving adequate care and attention afterwards, but bereaved fathers are sometimes overburdened and overlooked. Not only must they console the mother who just suffered a loss and who may be seriously ill herself, but they must also deal with their child(ren)’s death and memorial arrangements while also juggling household duties and possibly a job as well.

This article was written with grateful input and assistance from:
Dr. Elizabeth Pector, Illinois, U.S.A.

Sources

Bereavement in Multiple Birth, Part 1: General Considerations, Elizabeth Pector, MD; Michelle Smith-Levitin, MD, The Female Patient, Vol. 27, November, 2001
Miscarriage, pamphlet prepared by Canadian Mental Health Association, Windsor, Ontario, Canada
At a loss, article by Kimberly Pfaff, printed in The Walking Magazine, September/October, 2001

Reading Resources

Twins, Triplets and More, Elizabeth M. Bryan, M.D., St. Martin’s Press
Guidelines for Professionals: Bereavement, Bryan, EM; Hallett F, Multiple Births Foundation, London England www.multiplebirths.org.uk
Living Without Your Twin, Betty Jean Case, Tibbutt Publishing
Bereavement in Multiple Birth, Part 2: Dual Dilemmas, Elizabeth Pector, MD; Michelle Smith-Levitin, MD, The Female Patient, Vol. 27, May, 2002
The Worst Loss: How Families Heal from the Death of a Child, by Barbara D. Rosof, Henry Holt
Empty Cradle, Broken Heart: Surviving the Death of Your Baby, Deborah L. Davis, Fulcrum Publishing
Men & Grief, Carol Staudacher, New Harbinger Publications
Trying Again: Guide to Pregnancy After Miscarriage, Stillbirth and Infant Loss, Ann Douglas and John R. Sussman, M.D., Taylor Trade Publishing
Empty Arms: Coping with miscarriage, stillbirth and infant death, Sherokee Ilse, Wintergreen Press

Other Organizations

0

Surviving Co-Multiples, Twinless Twin, Lone Twin

Twinless Twins, Surviving Co-multiple(s), Lone Twin, all of these terms have been used to describe a co-multiple(s) who has survived his or her multiple birth sibling(s).

The death of a co-multiple might have occurred in utero, been a stillbirth, occurred in early infancy, through an accident, murder, suicide, illness or natural causes. The effect on the survivor(s) has only recently been researched and acknowledgement made that this type of loss may be more difficult for the survivor, regardless of the age the loss occurred, than was previously thought.  Some survivors call their loss (as it occurred later in life) ‘worse than losing a spouse.’  If one thinks about it, co-multiples have been together since conception and share a unique bond and lifestyle journey that majority of us do not. Changing “we” into “I” is not an easy transition and the first shared birthday alone, for example, can be extremely difficult.  For surviving co-multiples who look a lot alike, looking in the mirror can be emotional as they are reminded of their deceased co-multiple or get mixed up as to who is really looking back at them, a challenge the majority of us do not have to face.   It is important to not only recognize that this loss is unique, but that it also requires unique skills on the part of the professional for supporting and assisting survivors.

From time to time, I am approached by surviving co-multiples who would like to connect with other survivors. If this is you, send me an e-mail. Please include your age, age at loss, type of loss (e.g. illness, accident, stillborn, etc.) , whether you are male/female and gender of that of your co-multiple(s).  I will do my best to find a connection for you.

If you are a multiple birth survivor and would like to share your story, please send me an email and let me know about how your loss has affected you.  By sharing your story, it may be possible to help other surviving co-multiples with their grief journey. Please accept my sincerest condolences on your loss.

A neglected area of support, counsel, resources and understanding for twins, triplets and more are the experiences of those who lose their co-multiple(s). Multiple-birth individuals begin their lives together, but the odds are stacked against them in leaving the world at the same time.  Whether the loss occurs in utero, at birth, shortly thereafter or along life’s journey, for the survivors the loss can be devastating.

Studies have shown that multiple birth babies begin their unique relationship in utero. The special bond that they have with each other doesn’t terminate with the death of one (or more) of them.  While death may end the life of one or more co-multiple, it does not end the multiples’ relationship with each other. Turning ‘we’ into ‘I’ is not a simple task for the survivor(s).

I have been contacted by many multiples who lost their sibling(s) in utero and they express feeling “empty and/or unable to make and keep friends or have meaningful relationships.”  Some indicate they feel robbed, unworthy, stalled in their life, having to make their parents happy by living a life for two, trying to live a life for two because they do not want their co-multiple’s life to have been wasted, survivor’s guilt, and so much more.

Monozygotic [MZ] (identical) multiples often feel as ‘one’ and may feel each other’s pain, share each other’s thoughts and report feeling incomplete when they are apart. They are reminded of their sibling each time they look in the mirror and several surviving MZ men report having a difficult time shaving after the death of their co-multiple.  The task of shaving, which is common to most men, becomes an overwhelming reminder on a daily basis of his loss for the brother. One survivor grew a beard so that his reflection would not be a reminder of his brother. One MZ woman, who lost her twin sister in a car crash, reported being traumatized when she looked in her sister’s casket and thought she saw herself, dead. These types of blurring of the boundaries between one and the other are particularly difficult.

This does not mean that dizygotic [DZ] (fraternal) multiples do not also feel an intense bond between them. One adult woman who lost her co-multiple (a brother) from a childhood disease as 6-year olds noted that all of her life she had felt “lonely and alone,” in spite of a successful marriage, career and 3 beautiful children. “There is no one to watch my back,” she advised. Not only was she dealing with the loss of a special brother, but she also reported feeling guilty about surviving the disease that terminated her brother’s life. 
To make her mourning even more difficult, his things were packed up, given away and his name never mentioned again after he died.  She was old enough at the time of his death to remember him well and was upset and confused by her family’s decision to pretend that he had never lived.  Their decision left no space for her grief or the profound affect his loss made on her life.

It isn’t uncommon for surviving multiples to be very driven, often trying to live their lives for two, one for themselves and one for their deceased co-multiple(s). They may also feel a need to succeed in order to try to make their parents feel ‘happy.’

Or the opposite – a surviving triplet recounted that one sister died shortly after their births. A phone call to the family from the hospital indicating a second triplet had also died halted the funeral service, so that the two babies could be buried together. The wee survivor fought valiantly in hospital and had had 4 open-heart surgeries before she was 5 years old. At the age of 22 years, she was “stuck” in her life. Although she had managed to finish high school, she had done little else and felt she was drifting. She reported feeling melancholy, sad, guilty for putting her parents through the worries of her precarious health when they had already lost two babies, and very guilty that she had lived while her co-multiples had not.

It is highly unlikely that a deceased co-multiple would want their surviving co-multiple(s) to change places with them. I believe they would want their co-multiple(s) to live his or her life to the fullest, to succeed, to prosper and be happy. I would also suspect that they would want to be thought of from time to time, and have a little place in their sibling’s heart set aside to remember them.

Some concrete ways to remember your sibling(s) can include volunteer work in their memory, or making a donation to a special charity (perhaps annually – say your Birthday, or choose a date that is either meaningful to you or your deceased co-multiple), or having a tree planted in their memory. You might even find that when you have a child of your own, you may use your sibling’s name, even as a second name. All of these ways celebrate your sibling and his or her life, no matter how short.

If you feel that you simply cannot get over losing your co-multiple(s), consider asking your doctor to refer you to a bereavement counselor who understands the unique bonds that multiples share and what it can mean when those bonds are broken. Looking for support and understanding about what you are feeling doesn’t mean forgetting your co-multiple, but it does mean addressing your sorrow and pain and learning to handle it constructively so that you can indeed live your life to the fullest.

Here are a few resources, I have found which may assist you.

Bibliography

Living Without Your Twin, by Betty Jean Case, 2001, Tibbutt Publishing
Twin and Triplet Psychology, Edited by Audrey C. Sandbank, 1999, Routledge

Reading Resources

Who Moved the Sun?  A Twin Remembers, by Ron McKenzie, D.E.M. Publishing, 2011
The Lone Twin: Understanding Twin Bereavement and Loss, by Joan Woodward, 1998, Free Association Books
Entwined Lives, Nancy L. Segal, Ph.D., 2000, Penguin Books
Forever Linked: A Mother’s Journey Through Twin-to-Twin Transfusion Syndrome, by Erin Bruch, Philatory Ink, 2011
Men & Grief, by Carol Staudacher, 1991, New Harbinger Publications
On Children and Death, by Elisabeth Kubler-Ross, 1983, Collier Books
A Child’s View of Grief, by Alan D. Wolfelt, Ph.D., 1991, Center for Life and Transition

Organizations

Twinless Twins was founded by Dr. Raymond W. Brandt many years after the accidental electrocution of his monozygotic brother, Robert, at age 20 years. Dr. Brandt died in June of 2001 and was buried on the 52nd anniversary of his brother’s death.

0

Stillbirth and Newborn Death

The birth of a child is one of life’s greatest celebrations. Especially during a multiple pregnancy, parents fantasize about their babies, about walking them, showing them off to friends and family, trying out names and how they sound. When the outlook is positive, those close to the couple share in the journey as excitement and anticipation mount.

Yet when one, more or all of the babies dies by miscarriage or stillbirth, parents at times are encouraged to consider a miscarriage or stillbirth as something less than a “real” death. People around you often want to help, but find it difficult to understand the special circumstances of your loss. Information from Multiple Births Canada and other resources mentioned in this article can assist them say and do things that are helpful and avoid those that are hurtful.

If you do lose one, more or all of your babies, you may wish the birth and/or death certificates to reflect the fact that your baby(ies) was part of an appropriate multiple birth set, i.e. loss of one triplet does not make it a “twin birth”, loss of two quadruplets does not make it a “twin birth” and so on. You may need to be vocal about your wishes as some hospitals may record only the surviving baby(ies) and not your accurate multiple birth.

Stillbirth and Newborn Death

For women carrying multiples, prematurity remains the leading cause of death. Approximately 10% of all perinatal deaths are multiple birth children (Multiple Births Canada’s Fact Sheet, Multiple Birth Facts & Figures, 1998).

In spite of our best precautions, premature birth can still occur. There are no guarantees against the early delivery of your babies. Even in spite of appropriate and timely intervention by hospital staff, a loss of one, more or all of the babies may still occur. If such is the case, you will no doubt be:

  • grieving for your baby(ies);
  • grieving the loss of a unique type of parenthood;
  • feeling shocked, empty and alone with disappointment, anger, sadness and grief;
  • wondering how this could happen and fear that you might not have other children.

The loss of one baby from the multiple birth set, can present complicated emotions to deal with:

  • why this baby and not the other?
  • Did I resent or fear the thought of looking after two, three or four babies and thereby cause this to happen?
  • Did I “wish” one or more babies “away” and cause this to happen?
  • Did my preference for one sex cause this baby to die?
  • How will I tell the survivor(s) about her sister and when?

While these thoughts are normal, they also increase the burden of guilt and grief. Don’t leave these feelings bottled up inside of you. Talk to a grief counsellor, good friend, hospital staff, your partner or religious support person, in order to assist you in putting your feelings into perspective.

Losing one, more or all of your babies leaves the parents and those who care about them to deal with complicated issues. Some of these issues are:

  1. Not only have you lost a baby(ies), but you have also lost a unique parenting experience. Seeing other people with their multiples is a painful reminder of your loss, and may trigger feelings of envy, anger, failure or sorrow. In addition, when there is (are) a surviving child(ren), it can be difficult to resolve the conflict between the two extreme emotions that you are feeling – that is, the joy of the birth of a baby(ies) and the sorrow of the death of a baby(ies).
  2. Your feelings may include rage, shock, numbness, guilt, panic, being out of control, powerlessness, confusion, and/or denial. You are adapting to a new reality and it takes time to adjust. In fact, we are never the same after the death of a child(ren). We adapt and go on, but we are not the same. Grief is a journey, not a destination. Expect powerful feelings to resurface at different times as you walk the rocky road. It is healthiest to allow yourself the neeed time to experience them as they arise, rather than suppressing them.
  3. You may not wish to be touched or held for a period of time after your loss because of a fear of losing control of your emotions. At work or in social situations, you may not wish to discuss your children or your loss, afraid that you will break down in tears and be unable to stop the flood. It helps to tell family, friends and co-workers what you do and don’t want to talk about. Every parent is different. While some want and need to talk about their distress with anyone who will listen, others wish to keep their personal pain separate from their social responsibilities. It helps to tell family, friends and co-workers what you do and don’t want to talk about.
  4. You may find that people pay more attention to the live baby rather than the fact that one (or more) died. They may feel that dwelling on the dead baby may make things more uncomfortable for you. Feel free to speak up if you wish to speak of your dead child(ren). Others will be more open about their thoughts if they know you are happy to hear your dead baby’s name and consider him or her to be a special part of your family.
  5. On the other hand, you may wish, yourself, to push all thoughts of the dead baby(ies) out of your mind and concentrate on your surviving baby(ies). You might wish others would stop reminding you of the baby(ies) you have lost. You need not feel guilty about this normal reaction. Parents can only cope with so much at once. With newborns, especially when they are premature or ill, it is common for parents to devote their energy to their living children and delay grief until a later time. In due course, you will find the right way to acknowledge the child who died.
  6. Parents often hear inappropriate comments that are meant to comfort them but in fact, do exactly the opposite. To hear “It’s not the same as losing a baby, this one never drew breath.” or “You are young, you can have other children” is devastating, even if the comment is well intentioned.”At least one survived.” [I am truly grateful, but one crib is still empty.]
    “It’s God’s will. They’ve gone to a better place.” [There is no better place for babies to be than with their parents! ]
    “It’s for the best, she/he would have been disabled. [Death of a child is not “good” and not necessarily easier to handle than disabilities.]
    “You have a healthy baby, just forget the other and get on with your life.” [You have 2 legs. If one was amputated, how would you feel if I said “you have one healthy leg, forget the one you lost and move on?”]
    “You could never have handled quadruplets.” [Death of a child is not easier to handle than mounds of diapers or huge grocery bills!]
  7. Communication is important, and a counselor may help bereaved parents avert losing relationships with family or friends. People often call two surviving triplets or quadruplets “twins”. They need to know what you want to call them. Likewise, one mother reported one of her twin daughters was born very ill and died in the hospital after a short life of two months. Her mother-in-law focused on the surviving, healthy baby, sending the parents a card congratulating them on the “birth of their daughter”. The dead sister was never mentioned, even though she lived for two months, was named and given a funeral. A rift developed between the mother and mother-in-law, with hurt, anger and hostility at the lack of acknowledgement of one grandchild’s birth and death.
  8. Recognize that you will have limits. Your pain may be so intense that you will have nothing to give to the rest of the family or spouse. Be honest and let them know when you need some space for the time being.

Memories

It can be very helpful for parents to see, hold and touch their dead baby or babies. I feel very strongly that we cannot say “Good-bye” until we have said “Hello.” No parents have ever expressed to me their regret at having seen and held their babies, but several have expressed regret that they did not. Sensitive and caring hospital staff can encourage parents to hold their baby(ies), and bathe them if they wish. You can take photos of the deceased babies separately and together, with any surviving babies from the multiple birth, and with other siblings if you desire this. Hospital staff are often exemplary in supporting families at this difficult time, making it as easy as possible for you, although they cannot change the tragic reality of death. Parents are often given specially designed Memory Boxes, one per baby, which may include: the blanket the baby was wrapped in, a lock of hair when possible, plaster hand and foot prints, an outfit the baby wore, hospital bracelets and several photos of each baby. Such special items are cherished as tangible evidence of the reality and value of a baby who did indeed live, even if only in dreams.

There are companies and artists who can create drawings of your babies, or unite separate photos of babies with computer imaging to create a group picture. These tasteful and precious photographs or sketches can provide parents with much comfort. As one Dad put it “.it [the photograph] proved to the world that our son was real.”

This article was written with grateful input and assistance from:
Dr. Elizabeth Pector, Illinois, U.S.A.

Reading Resources

Twins, Triplets and More, Elizabeth M. Bryan, M.D., St. Martin’s Press
Guidelines for Professionals: Bereavement, Bryan, EM; Hallett F, Multiple Births Foundation, London England http://www.multiplebirths.org.uk
Living Without Your Twin, Betty Jean Case, Tibbutt Publishing
Bereavement in Multiple Birth, Part 1: General Considerations, Elizabeth Pector, MD; Michelle Smith-Levitin, MD, The Female Patient, Vol. 27, November, 2001
Bereavement in Multiple Birth, Part 2: Dual Dilemmas, Elizabeth Pector, MD; Michelle Smith-Levitin, MD, The Female Patient, Vol. 27, May, 2002
The Worst Loss: How Families Heal from the Death of a Child, by Barbara D. Rosof, Henry Holt
Empty Cradle, Broken Heart: Surviving the Death of Your Baby, Deborah L. Davis, Fulcrum Publishing
Men & Grief, Carol Staudacher, New Harbinger Publications
Trying Again: Guide to Pregnancy After Miscarriage, Stillbirth and Infant Loss, Ann Douglas and John R. Sussman, M.D., Taylor Trade Publishing
Empty Arms: Coping with miscarriage, stillbirth and infant death, Sherokee Ilse, Wintergreen Press

Other Organizations

0

One is Alive, One is Not

Please note that the information contained herein is general in nature and does not cover every possible situation.  If you have concerns about any aspect of your pregnancy, please consult your doctor.

For many months, you have delighted in carrying your precious babies beneath your heart.  They are very active and your belly grows almost daily.  Beating hearts have been visible on the ultrasound screen as perhaps have legs, arms or spines, depending upon which way they are lying.  One of the babies though is smaller (usually referred to as small for gestational age) and a little weaker than his co-multiple(s).

Then the unthinkable happens: the smaller one has passed away.  It is still early enough  in the pregnancy that it needs to continue for several more days, or even weeks, to give the survivor(s) the best chance at survival outside the womb.

This unbelievable and devastating situation is almost too much to absorb, let alone comprehend.  Shock as well as many questions leap into the parents’ minds in an attempt to understand what has occurred and why.  Following are some frequently asked questions:

Q: What is going to happen to my surviving baby(ies)?

The death of a multiple before 16 weeks of pregnancy generally creates no increased risk for the remaining baby or babies.  An after 16-weeks death of a multiple with a separate placenta from the other(s) is also not too likely to cause any problems.  When a deceased fetus’s placenta is shared with a co-twin (monochorionic), there is some risk of problems for the survivor, but not always.  With the death of a fetus when there is a survivor(s), the mother can expect to be closely monitored until birth. Your doctor can discuss your particular situation and explain a management plan for your pregnancy until birth.  While the mental strain can be very taxing, many women continue their pregnancy and have a healthy survivor(s).

Q: Will my dead baby hurt my living baby(ies)?

If the surviving multiple(s) is healthy itself, there will be no affect on the living baby(ies).

A deceased baby’s body begins to be broken down in utero and is reabsorbed by the mother’s body and/or the survivor’s placenta.  Depending upon how long after death it is delivered, depends upon what its appearance will be like when it is delivered.   Delivery can be expected to be earlier than previously planned if the babies share placentas and/or sacs.  Mom is carefully monitored until birth, so that the doctors can make timely decisions if needed.

Q: Did my baby ‘kill’ his sibling?

No, one baby didn’t ‘kill’ the other.  The deceased fetus usually has substantial health problems through no one’s fault (e.g. anomaly within a larger organ such as the heart). Through ultrasounds, it is sometimes possible to diagnose that one baby is weaker and has a compromising health problem(s).  In twin-to-twin transfusion syndrome (with monozygotics), for example, the mother is closely monitored to try and prolong the pregnancy as long as possible in order to give both (or all) babies the best chance.  With some medical issues within the womb, however,  it isn’t always possible to successfully intervene and one baby dies.   Sometimes the death cannot be explained until the baby and the placenta can be examined after birth and even then, the reason for the death may not be identified.   Depending on when a fetus passed away and how many days or weeks later the mother gives birth, it is not always possible to identify the cause of death due to deterioration of the fetus and/or placenta.

Q: How is this going to affect my own health and emotions?

Physical complications for the mother after one multiple dies in the womb are uncommon. Careful monitoring of both mother and surviving baby(ies) during the rest of pregnancy can detect any signs of concern.   Delivery may occur earlier than previously planned because of this changed situation.

Emotionally the situation can be quite different.  Some women report feeling fear, isolation, confusion, devastation or horror.  Some report feeling particularly close to their dead multiple because they know this is the only time they will have him/her. They report a great sadness through the rest of pregnancy, unable to find any joy in the approaching birth because they will need to give up that baby. Others push grief aside, fearing it will harm the remaining child(ren) or cause preterm labor. They dedicate their energy to hopeful thoughts about the survivor(s).  Some hang on to a belief that there has been an error and at delivery, there will be two (or more) healthy and alive babies.  All of this is normal.

Q: What will the delivery be like?  What will happen?

Your doctor, hospital staff and grief counselors can help you plan a birth experience that honors your deceased child while meeting the medical needs of your living baby.   Depending upon at which stage the baby died, you may need a death plan as well as a birth plan.  Communication with your doctor about the delivery will help clarify what will happen and how things will proceed.  Don’t be afraid to discuss with your doctor your needs and fears.

Q: What will our dead baby look like at delivery?

Your baby’s body will be small (as compared to its co-multiple[s]) but recognizable as a baby if death occurred after the 14th week of pregnancy. There will likely be some distortion of features and discoloration (bruising).  Discussion with your healthcare provider or a grief counselor can sensitively prepare you for your baby’s appearance, and help you choose whether to view him/her after birth or not.   Some families choose to view their baby regardless, some don’t want to view the baby.  Don’t be pressured into doing anything that you don’t feel comfortable doing.  Whatever you decide to do is what is right for you.  You may wish photos to be taken either by yourselves or ask the staff to take them for you, should that be easier.  Photos can be an important consideration as this is the only time both (all) multiples will be together, should you wish to do so.   The baby can be wrapped in such a way as only a foot or feet, hands or face is visible for the photos.  The hospital staff will be able to guide you.  You may chose to have the photos taken, but put them away and not look at them until a later date when you feel more comfortable viewing them.  Sometimes one parent will wish to see the baby and/or photos and one will not.  People do not all grieve in the same way so understand that your partner may make a different choice from yours.  There is no right or wrong way to proceed, only the way that works for you.

Q: Can we spend some time with our baby?

Yes, you can spend time with your deceased baby, if you want to.  Be sure and let the staff know ahead of time if this is what you want to do.  Have a note written in your file indicating that this is what you wish to have happen.   You can take as long you want or need to take with your baby.  In addition, some parents have hand and foot prints taken as a keepsake if it is possible.

Some options to consider for the remainder of your pregnancy: 

  • If you do not wish to view the deceased fetus(es) during ultrasounds inform the technician.   The monitor can be turned to another direction.
  • Doctor’s appointments may be booked when no other parents of multiples will also be present.  If this is better for you, then you can request it.
  • More frequent doctor visits and/or testing will occur in view of your situation. This may be reassuring to you.
  • Talk with your doctor if you have any fears about the surviving baby’s health.
  • You can see your baby(ies) at delivery should you wish to do so.  If you do not wish to do so, that is OK too.  The hospital staff, at delivery, can help you with the decision, if that works for you.
  • If you do not wish to view your deceased baby, you still can hold him/her, usually wrapped in a blanket. This relieves the aching arms felt by some grieving parents.
  • If you wish an autopsy to be performed discuss it with your doctor.
  • You may need or wish to make plans for burial, cremation or hospital disposition of your baby’s body.
  • Consider if you have photos taken, they may also be important for your surviving multiple(s) to view and to help you begin the discussion of how he/she began life.
  • In any photos you may wish to include yourselves and any older siblings so you have a record of the whole family together.  For some families photos confirm that they truly gave birth to multiples and reduce later feelings of confusion.
  • Computer programs can create a combined photo from two or more separate images.  Some parents who did not take photos of the babies together, can thus create a combined photo.
  • Ask for the survivor’s birth certificate to clearly state that the child was one of the original number of babies conceived. The death of a triplet does not create twins.
  • Some hospitals offer an honorary birth certificate for the child who died.  Ask for one if you would like one.
  • Children are not interchangeable and you do not have to listen to such comments as “As least you still have one” or “You couldn’t have handled three.”   Feel free to inform the speaker that such comments are painful and only add to your grief.
  • Contact Multiple Births Canada’s Loss Support Network which offers a monthly e-newsletter, Forever Angels.  You are not alone.  Other families have gone through the same thing and it can be very helpful to connect with them.

Sources

Bereavement in Multiple Birth, Part 2: Dual Dilemmas, Elizabeth Pector, MD; Michelle Smith-Levitin, MD, The Female Patient, Vol. 27, May, 2002

Reading Resources

  • Twins, Triplets and More, Elizabeth M. Bryan, M.D., St. Martin’s Press
  • Guidelines for Professionals: Bereavement, Bryan, EM; Hallett F, Multiple Births Foundation, London England  http://www.multiplebirths.org.uk
  • Living Without Your Twin, Betty Jean Case, Tibbutt Publishing
  • Bereavement in Multiple Birth, Part 1: General Considerations, Elizabeth Pector, MD; Michelle Smith-Levitin, MD, The Female Patient, Vol. 27, November, 2001
  • The Worst Loss:  How Families Heal from the Death of a Child, by Barbara D. Rosof, Henry Holt
  • Empty Cradle, Broken Heart: Surviving the Death of Your Baby, Deborah L. Davis, Fulcrum Publishing
  • Men & Grief, Carol Staudacher, New Harbinger Publications
  • Trying Again: Guide to Pregnancy After Miscarriage, Stillbirth and Infant Loss, Ann Douglas and John R. Sussman, M.D., Taylor Trade Publishing
  • Empty Arms: Coping with miscarriage, stillbirth and infant death, Sherokee Ilse, Wintergreen Press

Support Organizations and Web Sites

0

Bereavement: What Can I Do To Help Myself?

With the loss of one, more or all of your precious babies, you may feel as if you are falling into a deep, dark abyss and being pulled inside out, both at the very same time. The denial is there – this is all a bad dream and when I wake up, I will have my babies. And there is shock – this is not a part of the plan! This can’t be happening to me! It is not easy to go on.

At this very painful and vulnerable time, you will need to take special care. The following are a few tips that have helped others travel this rocky path.

  1. Learn everything you can about grief. There are many good books available on loss, grief and the journey to recovery. Many bookstores carry books on grief, the funeral home can provide a list as can your local library and any grief counselor. It is important to remember that grief is a journey and not a destination. Grief is very personal and there is no right or wrong to grieve and no time frame.
  2. Give yourself permission to grieve. It is okay to grieve, to cry. You have suffered a tremendous loss. Don’t try to block or push away the pain. It doesn’t work that way. It will be necessary to take the time to grieve.
  3. Be patient with the process and with yourself. You are adapting to a new reality. You are not the same person you were before the death. It will take time. Grief is different for each person, including for men and women. In other areas of your life you may expect immediate results, but this is different. Take the time you need, when you need. Be patient and gentle with yourself.
  4. Get plenty of rest and eat nutritiously. When we are grieving, one of the first things “to go” is our appetite. It will be necessary to get proper rest and to eat nutritiously. If you can only manage a snack, that is fine. Make sure it is nutritious.
  5. Treat yourself occasionally. Indulge yourself from time to time. A massage, walk or exercise workout may work wonders.
  6. Find caring people with whom to share your loss. Don’t keep your feelings and pain bottled up inside. There are many caring people to support and assist you: clergy, doctor, counselor, good friend, funeral director. Multiple Births Canada has a Loss Support Network, helpful support literature, a quarterly newsletter Forever Angels and confidential Angel E-Mail Connection between its loss members.
  7. Reflect on your life. It may be helpful to reflect on the relationship you had, however briefly. How will this change you? How will this guide you? So often with loss comes growth. Compassion, understanding, empathy. No matter how brief the life, their impact remains.
  8. Faith can be an important support. Many people find comfort and support from their spiritual or religious roots. Your faith may be an important comfort and cornerstone for you.
  9. Accept help. If someone reaches out to you and wants to help, tell them what you need: a cup of tea, a shoulder, a drive to a doctor’s appointment, quiet company. People want to help so if there is something that will be helpful to you, accept their help.
  10. You may find comfort and solace with your local support Chapter. To find the Chapter nearest you in Canada, check out Multiple Births Canada’s Web Site at http://www.multiplebirthscanada.org

Adapted from a brochure by Ontario Funeral Service Association

Other Resources:

The Lone Twin, Joan Woodward, Free Association Books, 1998
When a Twin or Triplet Dies, Multiple Birth Foundations, London, England, 1997 Living Without Your Twin, Betty Jean Case, Tibbutt Publishing, 1993
The Worst Loss: How Families Heal from the Death of a Child, Barbara D. Rosof, Henry Hold and Co., 1994
Bereavement in Multiple Birth, Part 1: General Considerations, Elizabeth A. Pector, MD; Michelle Smith-Levitan, MD, The Female Patient, Vol. 27, November, 2001
Bereavement in Multiple Birth, Part 2: Dual Dilemmas, Elizabeth Pector, MD; Michelle Smith-Levitan, MD, The Female Patient, Vol. 27, May, 2002

0

Grief, How Can I Help?

Question: My neighbours lost one of their triplet sons. I feel helpless and don’t know how to help. How can I effectively support the family at this very sad time?

For several reasons grief is very difficult to deal with: Grief has no time line; Grief is very personal and everyone grieves differently; and there is no telling what may trigger sad and painful feelings. Additionally, grief, for the same individual, becomes different as they walk along its rocky and difficult path. The individuality of grief and where a person in his grief journey, makes it difficult to know exactly how to aid and support someone attempting to heal. Another factor which can impede helping someone is our own inhibitions regarding death and in not knowing how to approach a grieving person. It may be easier for some of us to ignore a grieving person, perhaps with a mumbled “Hello”, no eye contact and then to get on with our own lives.

The following has been prepared in order to assist you when you come into contact with someone who has suffered a loss. I hope that you will find it of assistance.

NOTE: “Loss” is defined as any major loss – e.g. loss of employment, house fire, divorce, as well as bereavement. This article deals with loss by death.

  1. Step forward and approach the bereaved individual. Put out your hand or offer them a hug, if the situation is appropriate. Make eye contact and say, “I am so sorry!” Often that will be enough to allow the person to speak of their pain.
  2. Be a good listener. This rule applies in so many different areas of our lives and is extremely important when listening to a bereaved person. Don’t add to their situation by recounting horror stories of your own. It is not a time for one-upmanship of stories. This is their time and a time for you to listen, to perhaps once again say, “I am so sorry.” Or “It just isn’t fair.” Don’t take up this time with yourself but give freely of your listening skills. Don’t be afraid to use the deceased’s name during the conversation. If you don’t know what they name the baby(ies), ask them. They will appreciate the validation of their baby’s existence. Families need to speak of their lost one(s), including using their names.
  3. Be prepared to make yourself available. Make sure you don’t give them the impression of “hurrying” or speeding them along because you need to be elsewhere or because you feel uncomfortable.
  4. Try to accept the words shared with you. A grieving individual may rail against life, G-d, the doctors, the world. Don’t make harsh judgements. Just accept the words as they come. In an effort to get rid of our pain, it is not unusual to make rash and/or harsh statements.
  5. There are many concrete ways in which you can assist – take care of other children for a while, bring over a meal, send a card, make a donation to an appropriate charity, attend the wake, funeral or memorial service, make a cup of tea for the parents. Ask how you can help.
  6. Don’t minimize the loss – “You can have more children.” “It’s better this way. Your baby was sick.” “She has gone to a better place.” “G-d needed her more than you did.” None of these remarks are helpful to a grieving parent. Children are not interchangeable and “having another one” will not replace what should have been and “a better place” is here with her family. Families who have survivors of multiple birth children are often not given the proper space to grieve their loss. In a bereavement counselling group session, parents of a surviving twin where yelled at by a mother who had lost her singleton child, “Why are you here? You have a baby, I have none!” Minimizing anyone’s loss does not help.
  7. Don’t forget to acknowledge the father’s grief too. Too often the Mom is consoled while Dad is expected to “Hang tough.” Some people ask Dad how Mom is doing and don’t even think of asking him how he is. Dad too, has lost a child and experiences feelings of loss and pain. He has the added burden of society’s expectations that he can “cope.” He may be split between a child(ren) at home, a baby in the NICU, his job, planning a funeral, and his wife recovering from a c-section. He will also need your support.
  8. There are no shortcuts through grieving. Any attempt at a shortcut can only make things worse. Try and allow the bereaved person as long or as short a period as they need. Be patient. Avoid tell the person how they “should” feel or act or what they “should” do to make things easier. Also avoid saying “You are handling it so well” as this puts people into a box. Remember that there is no time limit on grief and several months down the road, these families still do not feel “normal”. They are trying to adapt to a new reality. They have still lost their child(ren) and nothing will ever change that.
  9. Encourage the bereaved person to look after themselves. To eat properly (it is not unusual for a bereaved person to stop eating and drinking), to see to their own needs and not to make important decisions right away. They need time first to grieve and heal.
  10. Remember that you are not responsible for this person’s pain. You didn’t cause it and because your children are alive and healthy, try not to feel guilty about it.
  11. Remember that you cannot take away their pain but you can assist them over the rocky path. You can be supportive and caring. You will not have all of the answers and, often there are not any answers at all. Life happens with no apologies or excuses and sometimes, it can be quite unfair. They did nothing wrong to deserve this.
  12. You may find it prudent to recommend some professional counselling, a physician, religious figure, grief counsellor or therapist. The library has books on death and dying and there are workshops, seminars or support groups that can also be of assistance. Your local funeral home will also be able to guide you in this area.
  13. One way a Chapter can be of assistance is to donate Multiple Births Canada’s Loss Booklets to the funeral homes and neonatal hospital units in your Chapter area. Such a donation will assist the professionals in being aware of the family’s unique needs.

Additional Resources:

  • Empty Cradle, Broken Heart, Deborah L. Davis, Ph.D., Fulcrum Publishing
  • The Worst Loss: How Families Heal from the Death of a Child, Barbara D. Rosof, Henry Holt and Company
  • On Children and Death, Elisabeth Kubler-Ross, Collier Books
  • Life After Loss, Bob Deits, Fisher Books
  • Men & Grief, Carol Staudacher, New Harbinger Publications
Did you do something special by way of support for a bereaved family and would like to share that idea with others? Write and let me know how you helped someone deal with the loss of their precious child(ren).